Examining information-seeking behavior in genetic testing for cancer predisposition: A qualitative interview study.
Publisher DOI
PubMed ID
32988685
Abstract
OBJECTIVE
This study aims to assess information needs and information sources and seeks to illustrate what at-risk individuals consider motivators of and barriers to information-seeking before and after genetic testing for cancer predisposition.
METHODS
Semi-structured interviews with people seeking genetic counseling in Switzerland were analyzed qualitatively using thematic analysis. Wilson's model of information behavior was the theoretical framework.
RESULTS
We identified four themes that illustrate motivators of and barriers to information-seeking: attitudes and emotions; knowledge; social environment; and demographic factors. We also elucidated information needs and collected participants' information sources.
CONCLUSION
This study£s empirical approach helps healthcare professionals to understand their patients' behaviors and wishes concerning information-seeking more concretely than theoretical models alone. The study also identifies information gaps, especially outside the genetic counseling setting.
PRACTICE IMPLICATIONS
Genetic counselors and other healthcare professionals need to purposefully assist patients in finding trustworthy and accessible information. Healthcare professionals in all disciplines need to be educated about predictive genetic testing.
This study aims to assess information needs and information sources and seeks to illustrate what at-risk individuals consider motivators of and barriers to information-seeking before and after genetic testing for cancer predisposition.
METHODS
Semi-structured interviews with people seeking genetic counseling in Switzerland were analyzed qualitatively using thematic analysis. Wilson's model of information behavior was the theoretical framework.
RESULTS
We identified four themes that illustrate motivators of and barriers to information-seeking: attitudes and emotions; knowledge; social environment; and demographic factors. We also elucidated information needs and collected participants' information sources.
CONCLUSION
This study£s empirical approach helps healthcare professionals to understand their patients' behaviors and wishes concerning information-seeking more concretely than theoretical models alone. The study also identifies information gaps, especially outside the genetic counseling setting.
PRACTICE IMPLICATIONS
Genetic counselors and other healthcare professionals need to purposefully assist patients in finding trustworthy and accessible information. Healthcare professionals in all disciplines need to be educated about predictive genetic testing.
Date Issued
2021-02
Publication Type
Article
Subject(s)
Subjects
BRCA Cancer predisposition Genetic testing Health communication Information-seeking behavior
Language(s)
en
Author(s)
Zimmermann, Bettina M | |
Fanderl, Julia | |
Koné, Insa | |
Bürki, Nicole | |
Shaw, David | |
Elger, Bernice |
Additional Credits
Journal
Patient education and counseling
Publisher
Elsevier Ireland
ISSN
0738-3991
Access(Rights)
restricted